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Michelleanne
Comments
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Hi Helen you sound a bit down,hope you are ok I told my professor all about chatting with you all , he said what a good idea it was lovely to catch up with people , they all sailed through it home within a few weeks no patients from when I went in positivity is the only thing that keeps me going some days I enjoyed the few…
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Hi all audrey I’m so pleased for you and you’re daughter and her family that things are going well it’s lovely to hear , we have 3 grandchildren 9 , 4 and 18 months they are always on the go and tire me but we enjoy them so much . helen hope things are going ok and they are listening to you Dave how are you ? Always here…
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Hi dave yeah I do my ankles and knees ache , mentioned it told to see gp , they say restless legs they ache so much i memory is so poor some days I feel like I’m loosing the plot I just take each day as it comes always here to chat if needed take care xx
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Hi all helen I do hope they listen to you and you get sorted I don’t think they really understand they do the medical side but that’s all or that’s how I feel please don’t get angry keep you’re energy for yourself I know it’s easier said than done I was in hospital yesterday for my 5 week appointment for my venesection…
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Hi helen hope all went well at the clinic and everything goes well with everything else thats what I get told , don’t be so hard on yourselve try light exercise but nothing works some days are better than others night night god bless xx
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Hi all weekends are lovely we don’t have to think about appointments I do that with my meds , they always knock me out a bit I’m never up early you have all made things better for me , we have a good little group here and hope it stays like that as it helps me so much i know talking to you all I’m not going mad thankyou…
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Hi audrey it is a long journey , harder than I ever thought it would be , never mind at least we are all still here enjoy everything anyway we can hope things are going ok love best wishes xxx
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Hi Dave not sure what causes to joint pain , I’ve been told to just go to see my gp i feel sad for you that you can’t get the medication you need , I hope they can find something to help you. I haven’t driven for 2 1/2 years I’ve no interest now, even going out I’m so tired and my joints ache I wonder it it’s worth it.…
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Hi helen Sorry to hear you’ve had a challenging time there’s always something , hope you get sorted soon I just take paracetamols I’ve been told to get eye drops , my skin is flaring up too every achievement makes you feel good hope this continue you all like super hero’s xxx
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Hi all dave I hope you start to improve soon , my eyes have started to feel very dry & gritty just in the last few months , awful pains in my hips . always here for you if needed even just for a chat Hope you are ok helen ? best wishes michelleanne
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Hi audrey that news is wonderful , you and you’re family have been in my thoughts a lot this week , I know how you feel you have a good cry you must release it , at least it’s for happy news lots of love and best wishes you’ve made my day give you’re daughter a big bear hug from me and my family , and her to hug you very…
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Hi audrey always here for you , please keep in touch xx
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Hi audrey i pray everything goes well for you’re daughter , I know what a worrying time it is my tests came back like that ,so I had to have a bone marrow transplant , you have had it just as hard , you are also amazing and very strong always here for you lots of love & best wishes you’re daughter has everything to fight…
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Hi audrey im so sad to hear about you’re daughters bone marrow tests , I hope you get better news next week , you will all me in my thoughts and prayers , keep strong always here for you take care much love michelleanne
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Hi all I had a chest infection at Christmas 2 lots of steroids & antibiotics still have it but they say it’s viral , I was told when needed to use my wheelchair but I feel such a fraud , hope everything else was aswell as it can be happy Easter to you amazing people wish I could give you all a hug , I’ll send one virtual…
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Hi all im not on them meds , I’ve had m.e for a longtime since having Hodgkin’s disease so having my bmt hasn’t helped , some days I feel great and other days I can’t do anything I think the mood swings are also my age I’m 60 in a few months, my brain says I can do everything but my body says no. hope you all get the help…
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Hi helen i wonder how Dave is , hopefully they’ll be able to help , we all do need to rest , even you audrey and look after ourselves much love michelleanne
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Morning all i do get concerned about Dave and your daughter audrey , I also hope you are getting stronger helen im like a zombie and weiry first thing in the morning and early evening sometimes all day , so I try and do things when I can I was told normal is a cycle on the washing machine , as we are all different I think…
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Hi audrey sorry to hear you’re daughter is back in hospital hope she feels better soon im not too bad at the moment apart from aches and pains , enjoying time with grandchildren outside now the weather is a bit better . how are you ? best Michelleanne
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Hi all you are really going through bad times with you’re gvhd , I have it in with my skin but no where near as bad as you , I really hope you can get it sorted soon , I would say my eating is worse than my skin , sore throat and no taste buds together we will get through this take care and much love michelleanne
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Hi Dave T i totally agree with eating habits , I’ve changed so much with food , I can’t drink instant coffee or anything fizzy and no alcohol I’m so boring . I hope you can get you’re gvhd sorted out soon take care best wishes michelleanne
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Hi helen were really lucky here that we have the nhs so I’ve had all my treatment through that i agree eat what you fancy , enjoy you’re weekend michelleanne❤️
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Hi all it took me a good year before my weight gain , now my weight is upto what I was don’t think it’s as much the amount of food , I have trouble with my thyroid it’s very hard to eat properly , I eat soft food and I eat more sweet things , I never really fancy food try rice puddings , milkshakes or hot chocolate , my…
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Hi all I’m still on nearly all my meds , the drs reckon I’m going to be on them for years , it’s weird that we all take different ones , it’s a good job we have the nhs or similar as we couldn’t afford the treatment I hope you get sorted soon with some form of meds to help you , that’s one thing mine gvhd is mild hope all…
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Hi all jan 3 you are doing great , I wish I was as far as you , I’m 2 years post bmt . we all have good days and very bad ones , I find the hardest part not doing what I want when I want , the best part is having my husband with me all the time he’s my soul mate. . I’m enjoying spending time with our grandchildren but they…
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Hi Dave sorry to hear you are finding things very difficult , I have some days when all I do is sit , and have very dark days , you are such a fighter and a very strong person , I find it easier to go one day at a time try not to be so hard on yourself , always here for a chat if that helps keep strong take cre best wishes…
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Hi all, hope you are all ok , helen I hope all goes well in the clinic , my blood tests are ok I’m going to hospital every 5 weeks to give blood to get rid of the iron , I’m still on all my immunosuppressants my legs ache and swell up my gp says I’ve just got fatty legs they don’t understand , pleased you enjoyed you’re…
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Hi helen I’m not too bad , enjoying time with the grandchildren , not enjoying the snow and the cold weather , we are doing well as we can be , be very proud and thankful for everyday day , even when it’s a bad day with raging hormones and everything else lol hope you are doing ok love michelleanne
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Hi audrey we are all on a roller coaster , I didn’t expect it to be as bad , im really looking forward to that enjoying spending time with family how’s your daughter ? take care michelleanne
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Thanks all that helps a lot michelleanne