Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus
How are you all keeping?
Im posting today as I sit here melting in my home with little to no cool air flowing.
As much as we welcome the hot weather for various reasons; mood boosting, vitamin D and a reason to be outside but how are we really finding this hot weather?
With some of us being on treatment and some being post transplant I'm wondering how you experience the intense weather changes ?
Myself I'm 18 months post Allo-SCT and find this hot weather intensifies my fatigue and pain levels. I had a recent discussion with someone experiencing the same thing and wondered if others had hints or tips for trying to keep cool?
I have found a cooling towel to be my saving grace. Due to difficulties regulating my electrolytes I'm limited with the amount I can drink but cheat with lots of ice lollies.
Hope you are all keeping safe.
All the best,
Community online champion