Suncream and breathlessness
I just had my first all 100% chimerism 8 months after transplant.
I can't wait to be able to meet up with someone in the garden. I've been going stir crazy at home.
I'm still struggling with breathlessness when I walk a few steps which has meant I can't go out for a walk.
I hope this will improve as I slowly build up my stamina. I've had a few setbacks with mouth gvhd etc weight loss and muscle loss.
How have others coped with breathlessness? It was bad then got better and then with gvhd of the mouth got bad again.
The lung function team have made a referral to have a lung function test but I've had one before and think its more of a tick box. If anyone can suggest anything else they did to help with this. It's really debilitating.
I had heart mri recently and that was overall normal.
I've never had any problem like this before the transplant. I feel like I'm 36 going on 90 😔
I'm trying to do 5 minutes on a bike inside everyday.
I have sensitive skin so wondered if anyone found particular sun cream factor 50 which doesn't irritate the skin?
I have gvhd patches on my skin bit of staph infection which I've told my team about.