Supporting mum with CMML
Hello, I’m Suzi and new to this forum. So glad to have found this space. Have been supporting my mum since her shock diagnosis of CMML in November. After a horrible admission she got home just before Christmas and has been on azacitadine cycles. She looks quite good considering what she has been through. We are on a steep learning and live in fear of infections and COVID doesn’t help! I’m sure you understand.
Obviously life has changed dramatically. Lots of shock and grief. She is 73 but had been fit and is strong. Her doctors suggested a SCT despite her age and we had hope but some members of the team think it maybe too risky. Prognosis of CMML isn’t great either. Looking for some hope that a SCT might give her a better prognosis (am feeling overwhelmed by the risks and focus on risk). And CMML is rare and it’s hard to find information and stories of lived experience.