Some of you may have received a text message from NHS Coronavirus Service about ‘shielding’ (staying home for 12 weeks). NHS England wants to ensure no-one at high risk of coronavirus misses its vital health advice. As a result, some patients who are not at high risk have also received that text message. Follow the advice of your own transplant team and check our full up-to-date coronavirus guidance here: www.anthonynolan.org/coronavirus.
Worry about it all!
I am a parent of a teen about to undergo BMT. We have, over the last few months, settled into a life of blood tests, transfusions, appointments and of course lots of admissions. So I am really grateful for the chance of treatment that my teen has been given. But I am so worried as the date approaches.
Up to now I have tried very hard to deal with each day at a time and not to look too far ahead at things that might not happen. Now I am worried about it all, and worried too that I should be mugging up on the 'homework' about expected side effects. Having had a few 'high drama' admissions, I'm dreading more of the same.
I am worried about whether I should return to work when my teen is having treatment - I had thought it might give some structure and normality to me, and space to my offspring, who might rather deal with being ill without me hovvering. But then I'm worried that I won't know what is going on with treatment, as communication isn't always the teen's strong suit. I also have a job which brings me into contact with low level illness regularly, and though generally I steer pretty clear with good hygiene etc, you never know... so that worries me.
My teen is keen to get on with things and very cross if I get weepy. I don't feel I can speak to the hospital staff about it.