Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus
Worry about it all!
I am a parent of a teen about to undergo BMT. We have, over the last few months, settled into a life of blood tests, transfusions, appointments and of course lots of admissions. So I am really grateful for the chance of treatment that my teen has been given. But I am so worried as the date approaches.
Up to now I have tried very hard to deal with each day at a time and not to look too far ahead at things that might not happen. Now I am worried about it all, and worried too that I should be mugging up on the 'homework' about expected side effects. Having had a few 'high drama' admissions, I'm dreading more of the same.
I am worried about whether I should return to work when my teen is having treatment - I had thought it might give some structure and normality to me, and space to my offspring, who might rather deal with being ill without me hovvering. But then I'm worried that I won't know what is going on with treatment, as communication isn't always the teen's strong suit. I also have a job which brings me into contact with low level illness regularly, and though generally I steer pretty clear with good hygiene etc, you never know... so that worries me.
My teen is keen to get on with things and very cross if I get weepy. I don't feel I can speak to the hospital staff about it.