It looks like you're new here. If you want to get involved, click one of these buttons!

Default Avatar

Howdy, Stranger!

It looks like you're new here. If you want to get involved, click one of these buttons!

Please read the house rules and keep this community safe for yourself and others.



Last Active


  • Thank you for your honest comments, I feel more prepared now, now on day 1 so we are just going take one day at a time Thanks lindsay
  • Hi Neil, My name is Lindsay and my husband has MDS and starting his conditioning treatment on the 14th September and his stem transplant the week after. I would really appreciate to check in with you at various times through this to get some advice I hope this is Ok Lindsay
  • Jane oxford, could you message me again, lost my e-mails again! Just wanted to know how your both going on Love lindsaylou
  • Janeoxford Can you please message me, I have lost your e mail address thanks
  • Hi, thanks for your comments everyone. My husband isn't having any kind of treatment at the moment as a bone marrow transplant is the only option. We are at the hospital tomorrow so will discuss options about the holiday, think Scotland may be a bit ambitious as he is poorly but maybe if they gave him a transfusion, he may…
  • Hi shell, I'm in the actually same position as you as my husband is due a bone marrow transplant soon. It's really frightening to feel your loved one has to have a transplant, but my advice is you need support yourself, try ringing the support groups as you need to look after yourself too, it looks like we are going to go…
  • Thanks Greg x
    in Waiting Comment by Lindsaylou March 2018
  • Hi everyone, thank you for your so kind words and understanding, ive set up a private group on messagner on Facebook and it's really really helped, even managed half an hour at the gym today which helped a lot. You know, you are all great for helping me when you have all been through this before, I really, hand on my heart…
    in Hectic Comment by Lindsaylou March 2018
  • Thanks nick, it gives me something to do and reminds me of happier times
  • Hi George, I've just joined here as my husband has just been diagnosed with MDS and he is just waiting for a bone marrow transplant. I'm not going through it personally like my husband is but can emphasise as a loved one. I can understand how scared you are, me too, and I suppose you think why me when you were just having…
  • Thank you Steve, that's very kind of you, glad I can have a project on the go now to keep me busy