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Anthony Nolan Patients & Families Forum

If you or your loved one is affected by bone marrow or stem cell transplant – this is the place for you. Connect with other patients, share experiences and support.

Discussion List

Discussion
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Replies
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Most Recent
Return of mutated gene in Long-term recovery
Answered
OtterfieldOtterfield
2
284
Rachel_LeadNurseRachel_LeadNurse
Severe neuropathy in Long-term recovery
Accepted Answer
lola001lola001
5
242
HelenSpeedwellHelenSpeedwell
Does anyone have experience of a SCT for AML for someone over 70? in Partners, friends & carers
Answered
JPWJPW
5
521
lola001lola001
Jakavi in General advice
Su0906Su0906
14
560
Su0906Su0906
Should new childhood vaccinations include HPV vaccination (even if not received as a child)? in General advice
AH67AH67
4
221
Anita59Anita59
Request for young person to share experience of treatment for B-ALL with Kymriah (CAR-T) in Young people - 18 to 25 year olds
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
0
109
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
Looking for support in Partners, friends & carers
JasabuJasabu
2
289
OllibollibooOllibolliboo
Chronic gvhd 123 in Long-term recovery
HollintreeHollintree
66
1.5K
HelenSpeedwellHelenSpeedwell
Shingles vaccine now available after transplant in Long-term recovery
Tom_AnthonyNolanTom_AnthonyNolan
2
383
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
Has anyone experience encephalitis after transplant? in Long-term recovery
Answered
BeaglegirlBeaglegirl
1
163
Karen_Dean_@_Anthony_NolanKaren_Dean_@_Anthony_Nolan
New GvHD treatment approved for use in Scotland in Long-term recovery
Tom_AnthonyNolanTom_AnthonyNolan
0
400
Tom_AnthonyNolanTom_AnthonyNolan
Availability of Jakavi (Ruxolitnib) for gvhd in UK in Long-term recovery
Accepted Answer
DaveTDaveT
23
1.1K
HelenSpeedwellHelenSpeedwell
Do you live with Sickle Cell Disease or Thalassemia? in Pre-transplant
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
0
195
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
Bone marrow biopsy results in General advice
BeaglegirlBeaglegirl
0
444
BeaglegirlBeaglegirl
Seattle Trial in Pre-transplant
Answered
Adrian62Adrian62
1
168
Rachel_LeadNurseRachel_LeadNurse
Sickle cell disease & stem cell transplant in Pre-transplant
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
0
188
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
Could this medication be what’s going on? in General advice
BeaglegirlBeaglegirl
1
128
Tom_AnthonyNolanTom_AnthonyNolan
Levels dropped needing a bone marrow biopay in General advice
BeaglegirlBeaglegirl
1
171
Liam_at_AnthonyNolanLiam_at_AnthonyNolan
Neurotoxicity in Early recovery
amberdogamberdog
1
150
Rachel_LeadNurseRachel_LeadNurse
Resources in Long-term recovery
HelenSpeedwellHelenSpeedwell
2
138
HelenSpeedwellHelenSpeedwell
Levels slowly dropping after 2nd transplant in Early recovery
Answered
BeaglegirlBeaglegirl
4
246
Rachel_LeadNurseRachel_LeadNurse
Weight loss suddenly 8/9 months post transplant in Early recovery
Accepted Answer
Calum96Calum96
2
203
Calum96Calum96
A two month old baby needing transplant in Pre-transplant
MaggieMooMaggieMoo
5
153
HelenSpeedwellHelenSpeedwell
Long term prophylactic antibiotic therapy in Pre-transplant
MeerkatMeerkat
0
142
MeerkatMeerkat
MDS relapse..second transplant? in General advice
TallgalTallgal
6
935
TallgalTallgal
Failed transplant in Partners, friends & carers
Answered
SuedbSuedb
4
355
SuedbSuedb
Very poorly after 2nd transplant in Early recovery
BeaglegirlBeaglegirl
1
160
SuedbSuedb
Autism and stem cell in General advice
Accepted Answer
KawaziKawazi
1
264
Tom_AnthonyNolanTom_AnthonyNolan
Help with frustration with fatigue and muscle weakness in Long-term recovery
MichelleanneMichelleanne
7
363
MichelleanneMichelleanne